H.R.3229 / S.2196
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More info at Access2CRT.org
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Letter from Steve Saling:
My name is Steve Saling and I have been living with ALS for 9 years. I am writing about Medicare's proposed rule change that will eliminate funding for the critical accessories that allow me to control my power wheelchair as of January 1st. I am almost 100% paralyzed but the little movement I have left coupled with some amazing technology allow me complete independence in mobility. Through strategically placed switches around my head, I can still drive my power wheelchair with great precision and accuracy. I am able to use public transportation independently and do so frequently. The ability of my wheelchair to tilt in space and adjust my footrest independently is critical for me to maintain my correct position throughout the day. The ability to elevate my seat is essential for transferring. I fully utilize every feature of my custom power wheelchair daily. I also depend on special inflatable cushions for seating and my backrest that allow me to remain in my wheelchair all day long comfortably and without ever developing pressure sores. Medicare's rule change will eliminate these critical accessories. Along with my speech generating computer mounted on my wheelchair, I am able to lead a vital and productive life. Without these technologies, I would be in bed 24/7, left staring at the ceiling. Living in the 21st century should not mean less technology for those who depend on it most. You supported the Steve Gleason Act and now I need you to please support S.2196 / H.R.3229 and pass it before the end of the year. My life depends on it. Thank you.
My name is Steve Saling and I have been living with ALS for 9 years. I am writing about Medicare's proposed rule change that will eliminate funding for the critical accessories that allow me to control my power wheelchair as of January 1st. I am almost 100% paralyzed but the little movement I have left coupled with some amazing technology allow me complete independence in mobility. Through strategically placed switches around my head, I can still drive my power wheelchair with great precision and accuracy. I am able to use public transportation independently and do so frequently. The ability of my wheelchair to tilt in space and adjust my footrest independently is critical for me to maintain my correct position throughout the day. The ability to elevate my seat is essential for transferring. I fully utilize every feature of my custom power wheelchair daily. I also depend on special inflatable cushions for seating and my backrest that allow me to remain in my wheelchair all day long comfortably and without ever developing pressure sores. Medicare's rule change will eliminate these critical accessories. Along with my speech generating computer mounted on my wheelchair, I am able to lead a vital and productive life. Without these technologies, I would be in bed 24/7, left staring at the ceiling. Living in the 21st century should not mean less technology for those who depend on it most. You supported the Steve Gleason Act and now I need you to please support S.2196 / H.R.3229 and pass it before the end of the year. My life depends on it. Thank you.
