WHAT IS AN ALS RESIDENCE?
An ALS Residence is a specialized skilled nursing center that is provided in a residential setting. The key ingredients are:
It could be argued that the ALS Residence provides a quality of life better than what the wealthiest individuals could provide themselves at home but what is inarguable is that for pALS without the option of living at home, there is no better place on Earth. The ALS Residence accepts Medicaid funding so that no one is excluded based on finances. Residents don't worry that their care will one day be lacking, even when needing a ventilator. Residents are still able to use their talents to pursue personal and business interests and to continue to be productive and engaged members of society. Because they don't have to depend on family and friends to provide the intimate, personal care that can desensitize personal relationships, pALS are free to pursue "normal" relationships. Because they have consistent professional caregivers who are dedicated and compassionate, they can relax knowing that they know their exact routine so that they can practically read their mind instead of depending on some home health agency that may send a caregiver that is not familiar with ALS and doesn't know what a pALS wink or nod means. ALS is still a devastating condition that radically changes the course of the lives for the diagnosed and their families. Everyone hopes for a medical treatment or cure but pALS who are willing to LIVE with ALS deserve the chance to do so.
The founding principle upon which ALSRI was created is to inspire other non-profit nursing homes to accept the challenge of creating a home for the chronically physically disabled. It takes a committed, mission driven, non-profit nursing home and the willingness to do annual fundraising to supplement Medicaid funding. Especially attractive is an expanding nursing home organization with a Certificate of Need from their State to build a new stand-alone facility. Such an organization is encouraged to contact us to schedule a tour of the Steve Saling ALS Residence and ample time to meet with the founders to discuss both the challenges and the rewards of setting aside some rooms for people with ALS (pALS) and similar conditions. The project need not be limited to a brand new nursing home. Any nursing home with buildable property adjacent to their existing facility or those planning major renovations are encouraged to commit 10 or 12 private rooms to people with physically debilitating conditions.
ALSRI believes the Green House® model provides the absolute highest standard of living and encourages others to consider it the gold standard. If it is determined to be cost prohibitive, it still makes a good goal for which to strive. Another key component is the PEAC automation system by Promixis. ALSRI is prepared to offer any organization valuable advice about how to make demonstrable independence a reality for even the most advanced pALS. PEAC not only provides real freedom for the residents, it greatly benefits the caregiving staff. PEAC will reduce the manhours necessary to provide quality care.
Any nursing home that has an interest is encouraged to
contact ALSRI to schedule a visit to the 1st such facility of its kind. The ALS Residence proves that it is possible for pALS to retake control of their destiny. Until medicine proves otherwise, technology IS the cure.